Advocacy

When I became a mom, I also became an advocate... and in some cases, a fire-breathing dragon. We realized quickly that there are people in this world who don’t think Lila should be alive. They don’t think she deserves a proper education or healthcare. They look at her like she’s trash.


People with Down syndrome (and other conditions) have to fight for rights others enjoy freely- like the right to life. They have to prove their worth in a society that won’t let them prove their worth. That’s why it takes a community of friends and family to make this world a more accepting place for people like Lila. You’re advocates too! We’re so thankful for all of you who support our girl, especially her teachers, therapists, and those of you who supported Lila’s Law.


It’s hard to see our girl treated like she’s worthless because we see her immense worth. Keep up the fight with us to move past awareness into acceptance and inclusion. Lila makes this world a better place, and we won’t quit until it’s a better place for her. #downsyndromeawareness #nothingdownaboutit #downsyndromeacceptance #inclusion




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Spread the word! SB 155 is now Act 837!! This law: • protects people with disabilities from organ transplant discrimination • requires providers to give reasonable accommodations needed to help people

Thank you to everyone who has called and emailed your lawmakers and shared about Lila’s Law! The bill has more to action to see. Everyone keep up the good work!! I want to give a shout out to Senator